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Independent living

Young woman with Downs Syndrome washing a glass in the kitchen sink

Independent living looks different for every young person. Some will need support in their daily tasks. Others won't need support to live independently. It will depend on their needs and abilities.

They may need adaptations or equipment to help them with their everyday activities. This can also help them to build confidence in doing things for themselves.

Your young person will need to consider the support and housing options available. Local adult services can help support your young person. This includes local adult services like occupational therapy and social care. 

Preparing for adulthood

Your young person with special educational needs or disabilities (SEND) will become an adult. They will move from children's services to adult services.

It is important to prepare yourself and your young person for this big change. This this can be exciting, upsetting and stressful. 

Personal Independence Payment (PIP)

If your young person is on the Disability Living Allowance (DLA), at 16 years old they will need to apply for PIP. These payments are not affected by working or savings.

Your child will get a letter inviting them to apply for PIP. The letter will be sent:

  • shortly after their 16th birthday
  • when they leave hospital, if they were in hospital on their 16th birthday
  • about 20 weeks before their DLA award ends, if they were awarded DLA under special rules for people who might have 12 months or less to live

The DLA payments will stop unless they apply for PIP by the given date in the letter.

Disability Living Allowance (DLA) will end when your young person is 16 years old. Your young person will need to apply for PIP when they turn 16. 

If they apply by the date given in the letter, they’ll continue to receive DLA until their claim is assessed.

GOV.UK

Personal Independence Payment (PIP) - GOV.UK

Information about PIP and how to claim PIP.

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Personal Independence Payment - Citizens Advice

Information, advice and support on Personal Independence Payments (PIP) from Citizens Advice.

Personal health budget (PHB)

A personal health budget is a personalised care and support plan using NHS funding. It will give your young person more choice, control and flexibility over their healthcare.

It is not using new or extra funding. It is a different way to spend the health funding to meet the needs of your young person.

NHS Square

Personal Health Budgets - NHS England

Information about personal health budgets and what to expect.

NHS Square

Personal health budgets for mental health - NHS England

Information about personal health budgets to support mental health.

NHS Square

Personal health budgets for people with a learning disability or autism or both - NHS England

Information about personal health budgets for people with a learning disability or autism or both.

NHS Square

Personal health budgets for children, young people and families - NHS England

Information about personal health budgets for children, young people and families.

Blue Badge scheme

Blue Badge Rights and Responsibilities Booklet - BSL - Department for Transport YouTube

The Blue Badge scheme allows people with disabilities to use more accessible parking options. This includes disabled parking spaces. 

When applying for a Blue Badge, you will need to provide documents as supporting evidence. 

GOV.UK

Blue Badge scheme - GOV.UK

Information about England's Blue Badge scheme: rights and responsibilities. This includes easy read, large type and audio versions.

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Blue Badge scheme - Bedford Borough Council

Information and advice on how to apply and use a Blue Badge.

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Blue Badge - Central Bedfordshire Council

Information about how to apply and use a Blue Badge.

Luton County Counil Square Logo

Blue Badge - Luton Council

Information about Blue Badges including how to apply, how to renew and how to report the misuse of a Blue Badge

Housing resources and toolkits

young man in wheelchair using a laptop with an older man leaning over to help

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My own place - National Development Team for inclusion (NDTi)

The 'My Own Place' report provides practical tools and advice to help young people with disabilities and their families. 

National Development Team For Inclusion Logo

Housing top tips - National Development Team for inclusion (NDTi)

9 top tips when looking for housing for young people with SEND. This guide is written for families and supporters to share with young people.

Where Do I Want To Live Logo Square

Where I want to Live Toolkit

A toolkit to help people with learning disabilities make choices about their lives. You will need to create an account to access the toolkit.

Local council housing support

disabled young man standing in doorway of house

Bedford Borough Council logo

Housing schemes - Bedford Borough

A range of housing schemes that help people with learning disabilities to live in their own home.

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Shared Lives Bedford - Bedford Borough

Shared Lives Bedford is about sharing your home and family life. It assists adults with learning disabilities to have greater everyday life opportunities within the local community.

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Bedford Independent Living Team - Bedford Borough

The Bedford Independent Living Team and the Huddleston Way supported living project offer support to people with learning disabilities living independently within the community.

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Housing - Central Bedfordshire Council

Information about council housing, housing benefits and renting privately.

Luton County Counil Square Logo

Transition to adulthood for independence - Luton

Find the Luton transition to adulthood for independence booklet, frequently asked questions (FAQs) and other resources.

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Transition team - Luton

The Luton Transition team works with young people between the ages of 14 to 25 who are on a current education, health and care plan (EHCP) or have special education needs or difficulties. 

Luton County Counil Square Logo

Supported Living search - Luton

Search results in Luton Council directory for supported living.

Accessible shopping

A number of major companies are working to make their shops more accessible. If they have an accessibility initiative, they will have a information about it on their website. Please note, you may need to use a search engine, not the websites search function.

Most major supermarkets have support to make their shops more accessible including 'quiet hours' and sensory kits.

Young man in denim blue shirt leaning over to pick up apples at a grocery shop

Last reviewed: 16 July, 2025

Ready steady go

Ready steady go is a programme to support young people transitioning to adulthood. The programme is made of up of 3 areas:

  • Getting ready – between 11 to 13 years old
  • Steady – between 14 to 16 years old.
  • Go – from 16 years years old 

It can be used by the young person and their parents or carers collaboratively to support transitioning to adulthood.

Other preparing for adulthood pages

Disabled Young Adult Looking At Phone With Adult

Preparing for adulthood (PFA)

Preparing for adulthood (also known as transitions). Moving from children's services into adult services. Learn about how our services can help and some of the changes to be aware of.

Read more
3 smiling women putting Post-It notes on a glass screen

Jobs and employment

Local job and employment resources and support for young people with additional needs.

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Disabled young adult sitting in a wheelchair at table with books a tablet a water bottle and a mobile phone

Education

Local resources and support that is available to young people with additional needs, if they choose to continue their education.

Read more
Young man in denim blue shirt leaning over to pick up apples at a grocery shop

Community inclusion

Local activities, clubs and organisations that focus on including young people with SEND in their local community.

Read more

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